For now there are still some medical bills that remain from James’ final hospitalization. Any donations in excess of our needs will go towards supporting other families of sick children, either directly or through:
Ronald McDonald House
Hearts For Hope
If you would like, please make donations below.
Thank you all.
James Shea Dean Johnson, age 2, of Round Lake Beach, died Tuesday, November 30, 2010 at Advocate Hope Hospital in Oak Lawn.
James was born September 29, 2008 at Advocate Lutheran General Hospital in Park Ridge, to Richard and Emily (Serocki) Johnson of Round Lake Beach.
James is survived by his loving family, which includes his parents, two brothers, Thomas and Liam; his maternal grandmother, Brenda (Gordon) Weggen of York, WI, his maternal grandfather, Ronald Serocki of Greenwood, WI, and his paternal grandparents, John and Kathleen Johnson of Mundelein; uncles, Kenneth (Melissa) Johnson, Edward Johnson, and Eric Serocki; and two cousins, Kieran and Rhys.
Visitation will be from 4 p.m. until 7:30 p.m., Sunday, Dec. 5, 2010, at Justen’s Round Lake Funeral Home, 222 N. Rosedale Court, Round Lake, IL 60073.
Visitation resumes at 9 a.m. on Monday, Dec. 6, at the funeral home before leaving at 9:50 a.m. for the 10:30 a.m. funeral Mass at St. Mary of the Annunciation Church, Fremont Center.
Interment will be private.
Those wishing to send an expression of condolence may direct memorials to www.littlejameshealthcarefund.com or to the Little James Health Care Fund, P. O. Box 343, McHenry, IL 60051.
For information, please call the funeral home at 847-546-3300 Friends may send an on-line condolence to the family at www.justenfh.com.
James just had his Fontan procedure Thursday 10/28/10. For regular updates please follow him on Twitter (LittleJamesHLHS) or on Facebook (Little James Hlhs), e-mail for both is email@example.com. Please keep him in your prayers, he is having some complications post-op.
The weekend had a rough start to it Thursday (we may have lost our car, see a couple posts down), but we still managed to get up to Wisconsin to attend Emily’s Mother’s Wedding Reception. We took advantage of being in the area with both sides of Emily’s family, and James got to meet a lot of his family for the first time. He met several Great Aunts and Uncles, and tons of cousins, but most importantly he met the rest of Great Grandparents. I cannot not find the words to express the joy in my heart to see James being held by his Great Grandparents, I myself never met one of mine, and unfortunately none of my Grandparents were with us when Emily and I were married. That said it is very important to me that my children got to meet some. Also I know how much they all appreciate seeing their Great Grandchildren, especially James with his condition. James did well getting up north and going to two different family celebrations, but by the time it was time to head home this morning he was ready. He has been very tired and fussy all day today, but seemed a lot happier once he got home. Very busy weekend, overall little man did well. Here are a couple pictures of James with Great Grandparents:
We would like to thank Twin Garden Farms for their very generous gift to us to help cut our grocery cost. Aaron Kinney who works with me at Hewitt is also a member of a farming community who sells their farm’s crop at various markets around the area. He nominated our family for free produce from the market for the whole year, and we were selected. We are very grateful and are enjoy fresh produce more regularly than ever. To find when and where Twin Garden Farms will be at a market near you please click on the link below.
Aaron told me his sweet corn will be ready next week!!!
It appears all the trips from Round Lake to Oak Lawn this past fall and winter was more than our car could handle. We had two vehicles a small family car that got good gas mileage (2004 Suzuki Verona) that was our “reliable” vehicle, and our Mini Van that still runs, but has been falling apart over the last couple or years and we just know how many more Chicago Winters it will make it through. Well Wednesday night Emily drove the Suzuki to work and it started knocking on her way home. As soon as I heard it I knew it wasn’t good. I got it to the mechanic who had it for 20 minutes before calling me and letting me know the motor was shot. I decided to take it to the dealer to see if it is covered under waranty. Since it has less than 100,000 miles on it and we have only had it for 18 months there is a warranty, but are going to look for any excuse they can fine not to cover it. We won’t know more till Tuesday or Wednesday, but at this point we know we need to do something, at least replace the Mini Van. We have already asked a couple dealerships for help, and did not have much luck. So we are asking for more help, if you know someone who is a friend of a friend with someone who has a dealership, please pass our story on. We think it is a great opportunity for a dealership to have some positive publicity. We are hoping the dealer that sold us the Suzuki will work with us, but so far they are avoiding the subject until Suzuki makes a decision on the engine.
James was discharged Saturday afternoon and back home a few hours later. We did not get MRI results before leaving Oaklawn, hopefully they’ll call us Monday. James is still a little sensitive around his new G-Tube, and a little crankier than normal, otherwise happy to be home again.
Well we knew it was too good to be true, that James could be discharged with only a 48 hour hospital stay. But fear not all is well. We wanted to have an MRI on James’ brain during this hospital stay and they told us we would have to wait until Monday to get on the schedule for the MRI. Everyone agreed it was not worth James staying in the hospital over the weekend just for the MRI when he could get it out patient potentially. At that point they said that he should be discharged today, but this morning one of the other MRI’s was cancelled for a different patient and they offered James the spot. Long story short he got the MRI today after all and they want to keep an eye on him over night since he was knocked out for it. He was alert and smiling not 5 minutes after waking up, and we’ll have the MRI results Monday at the latest. The plan is now for him to be discharged first thing in the morning so long as he behaves himself tonight. Here is a Picture of James with his brothers after coming back from the MRI:
We may not post MRI results right away, especially if it came back with nothing abnormal, so no news will be good news.
That’s right James has not been in the hospital 48hrs and they are already talking discharge. Our little miracle is 95% back to his normal self and looking wonderful, happy and ready to get home. We’ll keep you posted…
James; as always was a champ in the O.R., and came out of the surgery looking good. He is very tired and cranky, but only as much as is to be expected. They got him a room in the Pediatric I.C.U.; because of his heart condition and they want to keep a close eye on him. Otherwise he would be in a regular room or maybe even discharged. He will likely only be here a few days, but we aren’t wanting to temp fate too much, plus we want him to have an MRI on his brain, because he had seizures at a month old, and we want to rule out it being a chronic issue. That said, all is well, he was even smiling before I left his bedside.